Tyler's Back

Tyler's welcome and cheerful burst of enrgy this morning wore off after 10 am.  He spent the rest of the day in a kind of daze.  We were visited by another Child Life Specialist named Jenna today and she went on a hunt for trains and came back with toys, coloring pages, DVDs, and a puzzle to keep Tyler entertained and distracted from the discomforts of being here.  I am just so thankful for the amazing staff and volunteers here who make this experience as pleasant as possible for families.  Tyler was also anxious to get up out of bed and when the Physical Therapist came at 10:30 he stood (sort of) very briefly.  It was hard for him and he immediately wanted to lay down again.  I am happy to report that we tried again in the afternoon and he did stand for a little bit longer with less support.

We had My sister Vanessa and her family come to visit, and Nana and Papa brought Kaitlyn to visit as well.  Tyler did offer some smiles and a little small talk, but was just out of it for most of the visiting time.  Kaitlyn played with him and the trains for a while and he perked up to get to play with his sister again.  It is cute how much they miss each other. 

Nana, Papa and Kaitlyn visiting Tyler

Cousins Brooklyn and Sydney and sister Kaitlyn visit Tyler

He finally took another nap at 5pm which I hope will lead into a good, quiet, restful night for him (and us).  Sleeping in the room is a blessing because we can be with Tyler at all times, however, it is not a very restful place.  The wonderful nurses are quiet as they come to check on him, but they have to do their job.  Tonight the checks and medication should be spread out a little more so hopefully we get more sleep. 

Dr. Song checked in after 4 pm and said that on Saturday we should notice some big improvements, and we are looking forward to that.  For now, he is progressing just fine and is feeling OK.  His pain is well managed and he is beginning to do a couple of the things he needs to in order to go home, and we are happy for those blessings.